You know that whole “I’m going to try and make a post every single day” thing I said? Yeah I’m wayyy too forgetful to do that it appears. So I’m hoping to succeed in writing one every other day to every 3 days. With that, the last 3 days has absolutely sucked.
The day after my last post I got the call from my Doctor’s nurse the next day. I was met with only three options moving forward with this medication from hell. 1. Take it less frequently during the day, 2 times a day. (I was supposed to take it 4 times a day and only took it 3 times a day instead.) 2. Take a liquid version of the same awful medication or 3. Take my GI Referral and run. Of course at this point I picked #3. I mean how can you tell someone who is having multiple severe side effects that their only options are keep taking it or leave incompetent doctor care to a specialist??? It feels like they can’t give a single shit to do their job, but instead just leave it to Big Pharma to make it worse. Then the doctors get a fat paycheck and their patients are still not better.
Where I live the medical care isn’t top notch, but the hospital in my town has more lawsuits than I can even fathom. There are so many stories of people dying or almost dying on the doorstep of the ER here because no one is around to unlock the doors for them to come in. Why is it locked in the first place? IT IS AN EMERGENCY ROOM! This is just a small tidbit of the issues that lie within this joke of a hospital, and for me it was all of my symptoms being ignored for months on end because they wouldn’t believe me when I said I wasn’t pregnant. Pretty sure I should have a baby by now if that was remotely close to true.
Then comes the issue of all of the specialists being booked up for a month out, and having to wait yet another 4 weeks before anything new will happen. March 24th is the day I’ll be looking forward to every minute of every day for my appointment. For the first time in months I actually feel like progress is once again being made but at a freaking snails pace.
I immediately stopped taking that medication as soon as milk was coming out of my breasts for no reason, and within two days a lot of the side effects subsided and my breasts began to return to normal. This was even before I decided on the referral over continuing use, so I knew that was the right decision immediately. Those meds completely destroyed the last bit of appetite I had and that is still the main side effect I am having. The more days that pass the better it becomes, but last night was horrible because of it.
Yesterday was Valentine’s Day and I was having a really crappy day, but really looking forward to my dinner date with my boyfriend. This place makes homemade GF pasta and holy shit! Best GF meal I’ve had since being diagnosed. But I couldn’t eat it when it came. I put a bite in my mouth and it was heavenly on my tastebuds, but my stomach reeled. I thought I was overly hungry or something, so I took another bite, stomach reels, another, almost vomit. Okay, not eating right now then. The server was so sweet and kind about Celiacs and also me not being able to eat, so we gave her a 35% tip for being incredible and went home. My stomach was screaming at this point, went to the bathroom and had (sorry for TMI) the worst diarrhea I’ve had in a long time. Afterwards I did feel a bit better and within the hour I was hungry enough to delve into this heavenly dish and enjoy 1/3 of this huge mound of GF pasta.
So all I’m hoping for is to get my appetite back, my breasts fully back to normal, and honestly just feel the chronic nausea and nothing else. That is my new normal, and that is all I want right now. To feel the most like myself as I can without Big Pharma’s medications and horrible doctors who don’t take me seriously.
Tomorrow will be better. It always is in one way or another, even if it’s the small things.
Em
The Days in the Life of a Young Celiac 