Today has got to be one of the best days to happen over the last year. I FINALLY got the specialist appointment I have been waiting for since November 2019. With COVID-19 hitting the world like the disaster it is, everything became uncertain. I got the call a week before my initial appointment in March being told it was cancelled indefinitely.
The hospital where my specialist appointment was scheduled put out an update on Facebook in April that they were going to be calling back all of the patients whose surgeries and other appointments had been cancelled due to the virus, so I waited 3 weeks to get that call. Unsurprisingly it never came, so today I called to see if I could reschedule it. I was expecting another 2 month wait to get my appointment because I figured there would be quite an influx of people trying to get their appointments as early as possible.
Then they told me that my new, long awaited appointment was scheduled for May 28th at 2:30pm! Only a week and two days away! That was the absolute last thing I had expected due to the 2 month wait for my first appointment. I am ecstatic to say the very least.
One of the biggest reasons I am so happy that my appointment is so soon from now is that this week I have felt so so sick. I started a new vitamin regiment and I ended up throwing up one morning so I’m putting that on hold for a few days to see if that could be the culprit. I’ve felt better the last two days without taking them than the days I was taking it. At the same time though, I have been having immense breast pain that I can’t seem to figure out the cause. Of course that is one of the first signs of pregnancy so I took a test, and it came back negative. My period isn’t supposed to start until next Tuesday or Wednesday so I’m going to take another one closer to the weekend just to be sure. Pregnancy is relatively unlikely right now because my sexual activity has been minimal due to a lot of grief and loss that I have been going through on top of always being sick and having crappy joints. My joint pain and constant nausea is still very prevalent in my life and makes just existing difficult.
My joint pain is the most limiting thing though. I’ve been a lot more active with the nicer weather where I live, but even the most chill bike rides kills my knee and hip. The left side of my lower body is the most painful area. My knee and hip that are messed up are both on the left side, which is also my dominant foot too. Yesterday for example, my boyfriend and I were playing catch (he grew up playing baseball and softball with his whole family, they all played competitively and it’s quite intimidating) and it was fine other than my arm was sore from playing catch the day before too. The longer we played though the more pain I felt in my knee. When I said his family played their whole lives I wasn’t kidding, because his sister was actually my softball coach when I was 14. So because of that one whole summer of playing softball, I pitch to my boyfriend sometimes to make my ego feel good hahaha. I nailed the first two pitches I threw, the 3rd one wasn’t good at all, but then came the 4th. It was a horrible pitch due to a lot of different form failures, in which my hip popped and cracked in the worst way. I had to stop right then because I absolutely did something to hurt my hip more than normal, so I’m a little bit immobile on a beautiful 85 degree day today which absolutely sucks.
I wouldn’t normally pay much attention to it because I’m 19, young, and supposedly “healthy” but because of all of my problems, I’m not sure it’s even close to a normal thing. So now I need to go see my chiropractor to try and get some kind of alignment back.
I haven’t made a post in over a month because there hasn’t been any health changes with me since the last post, but a lot of different life challenges that have made feeling well harder.
But hope is truly around the corner, as 9 days from now I will finally be getting the appointment I’ve needed for the last year. I never in my life thought I’d be so excited to go see a doctor, because who the hell likes doctors?
The next time I talk to all of you, hopefully I’ll have more information on what the hell has been happening to me for wayyy too long.
Until tomorrow.
Em
The Days in the Life of a Young Celiac 